August 31, 2021

FUMS 6-Pack 🍻🍻🍻

 

Hello friends --The dog days of summer are upon us.  This heat is so oppressive. I hope you're doing ok.  I'm just staying inside - and dreaming of the cooler, Fall weather that (I hope) is right around the corner!Here's the top 6 topics in MS this week:1.  Below is a list of words that people sometimes use to define their MS symptoms. Read on to get a better grasp on informal MS terminology.  The Words You Should Know If You Have MS2.  From friend of FUMS Jenny Angus - her story of the ravages of #MS.  The Day The Poltergeist Moved In3.  Blocking a particular receptor protein of the BMP signaling pathway effectively promoted the maturation of myelin-producing cells and myelin repair in two mouse models of multiple sclerosis (MS), a study showed.  Myelin Repair 🤞🏻4.  Are you on Ocrevus? You should read this:  Ocrevus (ocrelizumab) reduces relapse risk and slows disability progression in multiple sclerosis (MS) but also is associated with higher hospitalization rates in older people with relapsing forms of the disease, a new observational study reports.  Ocrevus Reduces MS Relapse Risk, But Linked to More Hospitalizations5.  This feels like they could have saved a lot of time, energy and money had they just asked us: People newly diagnosed with clinically isolated syndrome (CIS) or multiple sclerosis (MS) frequently experience pain, fatigue, depression, and anxiety in the first year after diagnosis, a new study finds.  First Year Post DX Can Be Hell6.  Protecting your energy doesn’t make you a bad parent — it makes you the best parent you can be for your kids. 5 Tips for Parenting Through MS FatigueThat's all folks.  Hope you enjoy this newsletter. If so - please forward it on to someone else who might enjoy it.  Thank you.Warmly -- Kathy#FUMSP.S.  Get on the wait list NOW for the upcoming Patients Getting Paid Membership launch - September 13th. Join other ppl with chronic illness looking for ways to generate an income remotely - while taking good care of themselves (ourselves!).  Join the list here: Patients Getting Paid 

Sometimes it helps the stress, just to say "F-U-M-S"