Hey - It's Independence Day in the U.S. (July 4th) and that signals the start of summer to me. Cookouts, swimming, friends, and fireworks. Of course, we need to be mindful of overheating - always - but between a cooling vest, drinking cold drinks 🍺 and being in or near water, I feel confident I can manage it pretty successfully. And my daughter is returning from her study abroad program in Italy and my 2 girls are coming home!! I'm a very happy Mama. 🥳So - let's see what's cooking in MS this week (other than us 🥵)  :1.  Do you fear or embrace AI? Or are you somewhere in the middle? Maybe you haven't considered it - or you think it doesn't really affect you. Well - to you I say - buckle up buttercup. AI is here to stay and is going to be a wild ride. I'm super excited about it and here's an example of why: The Australian Government is investing $20 million to commercialize digital health research, taking it from the lab and putting it in the hands of patients and their health team, like using artificial intelligence to unlock the secrets of neurological disorders like multiple sclerosis and dementia.  Commercializing A.I. to unlock the mystery of multiple sclerosis2.  Did your parents or caregivers smoke when you were a child? Mine did. My parents loved me very much and would never do anything to hurt me. But that was years before we heard anything about secondhand smoke and its effects. Now this: Parental Smoking Increases Risk for Multiple Sclerosis, Multinational Study Shows3.  When given a specific set of chemical cues, immune cells called neutrophils can take on healing abilities that allow them to help repair damaged nerve fibers, a study by U.S. researchers found. The researchers hope to build on this discovery to create new treatments for MS and other neurological disorders that are marked by nerve damage. Immune cells can take on healing abilities to repair nerve fibers: Study4.  Telerehab. I had never heard that term - but I like it. And I like the implication - rehab - at home. Yes, please. "Our findings are promising, demonstrating that remote interventions can be both effective and satisfying for participants. Delivering therapy to individuals at home is not only convenient," Dr. Goverover noted. "It expands access to cognitive rehabilitation designed to improve how individuals function in their daily lives."  Pilot study shows promise for remote cognitive rehabilitation for multiple sclerosis patients5.  Do you deal with anxiety? A lot of us do. In fact, it is one of the most common symptoms in MS. I would argue that getting this damned diagnosis would certainly give most people AT LEAST situational anxiety.  But anxiety doesn't wear off when the shock does. It tends to stay with us. Have you ever wondered What’s the Link Between Anxiety and Multiple Sclerosis?6.  Have you ever heard of Marburg Multiple Sclerosis?? I had not. The Marburg variant of multiple sclerosis is extremely rare but also the most severe. Life expectancy has been weeks or months, but advances in treatment have led to an improved outlook. What Is Marburg Multiple Sclerosis?

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Disclosure: This post may contain affiliate links, meaning I get a commission if you decide to purchase through my links, AT NO ADDITIONAL COST TO YOU. I would NEVER recommend something that I didn't believe in 100%. 

KATHY RECOMMENDS:Shout out to FUMS community member Denise Nelson for sharing this exercise machine:"I can do it watching TV or working at my desk. I can be inside on those hot days but still be getting exercise. I think it's fun and it works not only my legs but also my core - and that helps everything else!"  

DeskCycle Under Desk Bike Pedal Exerciser 

**Do you have a product you'd like to share with the FUMS community OR is there a product you'd like me to try for you?? I'll be the guinea pig! Don't buy it - 'till I try it! 😉 Hit reply to this email and let me know! _____________________________________________

MS Clinical Trials Now Accepting Patients Probiotic Chocolate Study in Multiple Sclerosis The goal of this study is to assess the effects of probiotics on persons with multiple sclerosis (MS), persons at higher genetic risk for MS (first degree family members of persons with MS), and healthy controls. Participants will be asked to consume probiotic containing chocolates (Bouchard Belgian Dark Chocolate Probiotic Napolitains containing 10 billion CFUs of bifidobacterium longum per day) for 6 weeks. Participants will undergo blood draws before and after the 6 weeks of probiotic containing chocolate and microbial metabolites and immune markers will be compared before and after the probiotics, as well as between groups.Entire-body PET Scans for Multiple Sclerosis (EPSMS) - To evaluate whether an entire-body positron emission tomography (PET) scanner can be exploited to improve evaluation, monitoring and measurement of both peripheral and central demyelination in multiple sclerosis (MS) patients.That's all folks. Let me know if you have any questions or if I can help you in any way. Otherwise, just keep saying FUMS!! 🧡Cheers -- KathyKathy Reagan YoungFounderFUMS

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