July 31, 2020 FN6P

FUMS Friday Nigh t6-Pack 🍺🍺🍺🍺🍺🍺

 

Hello friends --How's things? You know - other than a global pandemic, protests, and civil unrest in our streets?? Wow - what a time in history - and we're living through it. It's exhausting. I hope you're taking care of yourselves during this unprecedented stressful time. I'm taking my own advice and I've just booked a house in Bethany Beach, Delaware for my family and I. I realized that I literally hadn't taken any time off since July 4th. 2019.  My fault. That's dumb. I'm feeling compassion fatigue, exhaustion, stress and overwhelm. Like so many others right now. So - I'm shutting off and powering down for a full week next month. Awwwww. Can't wait. Are YOU doing anything fun to distract yourself for this mess?? Hit "reply" and let me know. I absolutely LOVE hearing from you.Alrighty then - let's get to it:1. Today is the last day to vote in the WEGO Health Awards. I am lucky to have been nominated for multiple awards and would so appreciate your vote if you think I'm deserving of it. Winning would allow me to be featured as a top patient expert in a patient-centered webinar series, as well as industry exposure opportunities throughout the year. I would appreciate it so much if you could please click the link, then click on "endorse this patient leader" to cast your vote for me. Thank you so much. Here's the link: Support Kathy2.  I posed the following Community Question over in the FUMS Facebook Group: "When a COVID vaccine is available, will you get it?"  There were a lot of very interesting responses. Have a look for yourself: C19 Vaccine - Yes or No?3.  Where are my Tysabri users?? Here’s some good news for you!!!  Tysabri in Long-term Use Seen to Lessen Relapses, Stabilize Disease4.  There are more drugs available to treat MS than ever before. Wouldn’t it be great to know which ones worked best for all of us living with MS?  MS Research Has Been Ignoring the Black Community. It’s Time That Changed5.  Representatives for the England-based MS Trust say they heard from Coachella lawyers about the name of their event.  Multiple Sclerosis Charity Says Coachella Made It Rename “Couch-ella” Benefit6.  As I continue to build the Patients Getting Paid membership community to help people with chronic illness find and create job opportunities to accommodate their health - I am exposed to more and more gigs (imagine that)! Here are a couple specifically for MS'ers - and you could make $250!!  Here's one for PPMS'ers and here's one for RRMS'ers.  Good luck!!  And be sure to get on that PGP waiting list to be the first to know when I launch it: Patients Getting Paid Waiting ListWell - that's all for this week! Thank you for your support on the WEGO Health Awards. I really appreciate it. Please let me know if there is anything I can help you with. Just hit "reply" to this email. Stay safe!!!Warmly -- Kathy#FUMS

Sometimes it helps the stress, just to say "F-U-M-S"