June 26, 2020 FN6P

FUMS Friday Night 6-Pack 🍺🍺🍺🍺🍺🍺

 

Hello friends --Well - when last we chatted (last Friday's 6-Pack) I told you my harrowing story of an MRI gone awry. Today is the first day that I've been out of bed all day. I've spent 7 days in bed dealing with intense fatigue and cog fog. Good times. Good times. UGH. I called the MRI Center this morning and told them I want my $539 back. We'll see what happens with that. Meantime - they had actually sent my neuro the MRI report - but she had failed to contact me. Sooooo happy with my medical care. Great news: no new lesions. My MRI is stable!! YAY. Now - if I can just get my money back on that MRI I'll just chalk this all up to a really hard lesson.Get to the good stuff, lady.Ok, ok. Here you go:1. There's a brand-spanking-new episode on the FUMS Podcast Show that just published. YAY. My guest this week is Kim "Kid" Curry, former radio DJ and executive who was dx'ed with MS and had to completely change his life. He wrote a book about it called "Come Get Me Mother, I'm Through" all about his experiences. Interesting stuff. Listen in right here: Kid Curry2.  This badass FUMS'er with Diabetes and Asthma beat COVID-19. WHAT!?!?  Read all about it here: FU COVID3.  WHOA - this is potentially significant: Gilenya (fingolimod) may benefit people with severe respiratory disease associated with COVID-19, a case report highlights.  Gilenya to the Rescue???4.  As always, Dr. Aaron Boster has produced an incredibly valuable, information-filled video for the #MS community. This time he's addressing medical #marijuana. Check it out: The Real Scoop on MJ5.  I'm happy to see more studies for our PPMS community members. Atara Biotherapeutics has enrolled a first patient in a clinical trial testing ATA188, its off-the-shelf T-cell immunotherapy for people with progressive forms of multiple sclerosis (MS).  PPMS Gets Some Love6.  The disparity in health as well as healthcare and health research is stunning.  MS Among African-Americans: New Research Challenges Old BeliefsWell - that's all folks. Hope you learned something that will help you in this little newsletter o'mine!  Between this newsletter, the FUMS Blog, the FUMS Podcast Show, and now Patients Getting Paid, I could really use some support. If you get value from any and/or all of these resources I provide and would like to show your appreciation, please check out my Patreon page to see how your monthly contribution could help me AND get you some cool rewards. Check it out here: Support for FUMSWarmly -- Kathy#FUMS

Sometimes it helps the stress, just to say "F-U-M-S"