June 26, 2024

Hey - How are YOU doing?? I was just up in Minnesota to surprise my sister for her birthday and those poor people up there are dealing with horrible flooding. Then I get back to Virginia and we're in a heat dome! UGH. 🥵 That means I'm tired from traveling and I'm staying inside to stay cool. 🪭  😎Want to know what's happening in MS this week?? Well then, you've come to the right place, my friend!1.  I bet I get asked about stem cell therapy for MS at least 5 times a month. As with all things in MS, stem cell therapy (in various forms) is very individual in both its appropriate usage and results. This column is written by a woman with aggressive RRMS who traveled to Russia for treatment. I thought she did a great job of tying in how we all have to learn to embrace the unknowns that are MS while sharing her aHSCT experience. Embracing the unknown in Russia taught me a crucial lesson2.  I swear I didn't find this article until after I had posted #1. But it's an exciting potential advancement in stem cell research!!  $2.9M research grant funds technology for MS stem cell therapy:University at Buffalo scientists win funding for injection research3.  “If this proves effective, this could be a potential new avenue for treatments for individuals with progressive MS.”  Ummmm - yes, please.  There are too few advancements and treatments in the progressive form of MS. Here's hoping. 🤞🏻  Crossing the blood-brain barrier to treat MS  🧠4. Do you get vaccines? Are you unsure of whether or not you should - based on your MS dx?? I got choo.  What You Need To Know About MS and Vaccines5.  Friends have asked me what is the worst symptom of MS for me. That's easy. In the UNIVERSE of symptoms that MS can deliver - cognitive impairment is my most hated. It is so debilitating. It makes me question myself and my mental capability. And my future. And my worth. It's very hard to explain. Stress and anxiety can make it worse. And it can come out of nowhere and at any time. #FUCogFog!!  MS cognitive problems linked to worse mental, physical life quality6.  People who have MS are at higher risk of dental disease. Did you know that?? I didn't! Makes sense. How MS Can Affect Your Oral Health______________________Disclosure: This post may contain affiliate links, meaning I get a commission if you decide to purchase through my links, AT NO ADDITIONAL COST TO YOU. I would NEVER recommend something that I didn't believe in 100%. KATHY RECOMMENDS:

After hearing from many FUMSers about the benefits of using Taopatch, I just had to find out more. I interviewed Dimitri Leonov, Co-Founder and CEO of Taopatch USA for more info on the FUMS Podcast.

Taopatch is a wearable device that captures heat from your body and converts it into light, which it emits to specific points on your body. These photons stimulate your Central Nervous System and “remind” it how it was meant to communicate with the rest of your body.

By combining light therapy with acupuncture, Taopatch can naturally boost your immune system, improve posture, balance, and mobility, and improve emotional and mental well-being. The results they’ve seen with Multiple Sclerosis, Parkinson’s, and other neurological diseases are incredible.

Listen in to find out more about how Taopatch works, the company’s no-questions-asked money-back guarantee, and a special discount for the FUMS nation.  Taopatch on FUMS Pod

Want to learn more or try one yourself??  Here's where to go:  Taopatch**Do you have a product you'd like to share with the FUMS community OR is there a product you'd like me to try for you?? I'll be the guinea pig! Don't buy it - 'till I try it! 😉 Hit reply to this email and let me know! ________________________MS CLINICAL TRIALS CURRENTLY RECRUITING PATIENTS:RED4MS is a clinical trial to assess the safety, tolerability, and efficacy of autologous peptide-coupled red blood cells (CLS12311) in patients with relapsing-remitting multiple sclerosis (RRMS). CLS12311 consists of autologous red blood cells (RBCs) chemically coupled with antigenic peptides and aims to treat RRMS by induction of antigen-specific immune tolerance. Peptide-coupled Red Blood Cells for the Treatment of Multiple Sclerosis (RED4MS) Central Vein Sign: a Diagnostic Biomarker in Multiple Sclerosis (CAVS-MS)ClinicalTrials.gov Identifier: NCT04495556Principal Investigator: Peter Calabresi, M.D.That's all folks. Let me know if you have any questions or if I can help you in any way. Otherwise, just keep saying FUMS!! 🧡Cheers -- KathyKathy Reagan YoungFounderFUMS

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