- The FUMS 6-Pack
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- May 24, 2022
May 24, 2022
FUMS 6 Pack 🍺🍺🍺🍺🍺🍺

Hello friends --Hope you're doing well. I went to NYC last week and met up with producers, editors and hosts of the podcasts on the Offscrip Health Network and it was amazing. Fun to chat in real life with people who speak my language: healthcare and podcasts!!! Let's get to the good stuff:1. Are you interested in helping researchers advance their study of MS AND getting paid??? Who isn't, right? Well - listen in to this episode of the Patients Getting Paid Podcast where I interviewed Mel Havert of Rare Patient Voice about how they find patients for various research studies that are in need of patients - and then - get them paid for it! WIN WIN. Just click the link to listen right here: Get Paid for Sharing Your Patient Experience2. When my kids were little, I asked a pediatric neurologist what I could to help reduce the likelihood of my girls getting MS. She said, "give them Vitamin D3" - so I have, for years now. This study supports that. Lower MS Risk in People With High Vitamin D Levels When Young3. I didn't know actress Cybill Sheperd's daughter has MS - did you?? Well - she does! I'll reach out and see if she'll come on the FUMS podcast!!! 😉 Cybill Shepherd Recalls Daughter Clementine’s Multiple Sclerosis Diagnosis as ‘One of the Most Difficult Days of My Life’4. Researchers have found a way to reduce inflammation in MS in mice. Here's hoping this translates from Mickey to people!! 🤞🏻 A New Treatment Reduces Inflammation in Multiple Sclerosis Mice Models5. I'm asked all the time by newly diagnosed whether or not to disclose to their employer. I always say no. I tell them to hold off until they can't hold off anymore. Seems Selma Blair's doctors concur. Selma Blair on living with MS: ‘My doctors urged me not to go public. They worried I wouldn’t get work’6. In a small trial, immune cells that fight the Epstein-Barr virus have stopped the progression of multiple sclerosis, an autoimmune condition that can lead to symptoms, such as difficulty walking, that worsen over time. MS reversed by transplanted immune cells that fight Epstein-Barr virusThat's all folks. Hope you learned something that will help you in this newsletter today! If you have questions or anything I could help you with, please hit reply to this email or meet me over in the FUMS Facebook community and let's chat! Thanks.Warmly -- Kathy#FUMSP.S. I'm considering the idea of bringing together a bunch of MS advocates to do a roundtable discussion for a podcast episode (and video) and taking YOUR questions about all things MS. I wanted to get your feedback and save myself the hassle if this isn't of interest to you. So please - let me know your thoughts. AND - if it is of interest to you, any ideas you might have for it would be appreciated and - how do you think I should take the community's questions - by email, social posts or a voicemail system?? Thanks so much for your help.
Sometimes it helps the stress, just to say "F-U-M-S"