Oct 12 FUMS Friday Night 6-Pack

FUMS Friday Night 6-Pack🍻

 

Hello friends --We had another Hurricane come a callin'. This time Michael ran through Virginia leaving tornadoes and power outages - and several deaths - in his wake. The good news, however, is that he seemed to usher in some lovely Fall weather finally! Hope you're enjoying some wonderful weather wherever you are as well. Let's get to the Friday Night 6-pack, shall we?? 

  1. The latest FUMS Podcast Show episode dropped this morning. This one is PACKED with actionable interesting information - all about finding flexible work options that work for people with chronic conditions!  AND - the interviewee - Brie Reynolds with FlexJobs gave our community a gift: 30% off of sign up!! It's a GREAT interview. Check it out here: FlexJobs Podcast Episode

  2. Are you interested in participating in Clinical Trials?? Don't know where to start? Here's a great resource. Just put in your location and all clinical trials in your area will be listed!!  Click here: Clinical Trials

  3. Here's a GREAT resource if you're interested in patient advocacy gigs: Savvy.coop. Such a cool group of people - bringing patients and companies looking to hire patients together! Here's an example of a gig for MS'ers: MS Gig

  4. Here's a frightening article for those of us with a chronic illness: Possible Removal of Pre-Existing Conditions Protections  WHAT!?!?! Deep breaths. Deep breaths. 

  5. FINALLY some news for the PPMS folks among us: Drug May Slow Brain Atrophy in People with Progressive MS

  6. Federal prosecutors are reportedly looking into whether or not patient assistance programs are legal. WHAT?? US Government Probes Drugmakers RE: Legality of Patient Assistance Programs.   Trying to breathe. Trying to breathe. Trying to breathe. UGH.

That's it for now. Hope you have a wonderful weekend. If you haven't already, please join me - and about 1100 of my closest friends - over in the FUMS Facebook community.  I hang out there a lot - and those 1100 folks?? Really nice and supportive and kind and funny and cool and did I mention nice? Hope to see you in there soon!Warmly -- Kathy#FUMS 

Sometimes it helps the stress, just to say "F-U-M-S"