- The FUMS 6-Pack
- Posts
- October 9, 2024
October 9, 2024
L👀K: It's the FUMS 6-Pack 🍻🍻🍻
✨ The Featured Care Center for this week's FUMS 6-Pack is The Boster Center for Multiple Sclerosis, an expert medical team of MS-focused clinicians and researchers who are ready to help you with the comprehensive patient care you need. Patient care, education, treatment, symptom management, and onsite infusion therapy in a beautiful facility in Columbus, Ohio founded by Dr. Aaron Boster. Learn more here: The Boster Center for Multiple Sclerosis ✨
Hey - I'm baaaaaaack! I took a week off and went WAY up north - to the north shore of Lake Superior in Minnesota. It's gorgeous up there and I got lucky with great weather. I was there with my sister and my sister-in-law celebrating our 3 milestone bdays. We did the "Art Along the Lake" studio tour. We got to go into artist's homes/studios, meet them, watch them work, and purchase their work. AND - we stayed at a beautiful, old resort right on Lake Superior. There's something special about watching the sun come up over the big lake - and finishing the day with a glass of wine on its shore. *I missed a show of the Northern Lights by 1 day. 🙃 If you're interested, here's a link to the resort and the annual tour: Naniboujou Lodge | Art Along the Lake TourEnough about your time off, lady. Get us some tasty MS news and goodies!Here you go:1. Researchers are investigating a new, more targeted approach to treating MS that involves using a type of immune cell called tolerogenic dendritic cells (tolDCs), derived from the patients themselves, to target the disease more precisely. This study represents a significant step forward in the use of personalized cell therapies for autoimmune diseases, potentially revolutionizing how multiple sclerosis is treated. Let's hear it for personalized medicine!! 🥳 Vitamin D3 Boosted Immune Cells: Scientists Discover Promising New Treatment for Multiple Sclerosis2. The FDA has granted investigational device exemption to a clinical-stage healthcare firm for its proprietary neuroimmune modulation platform for individuals with relapsing-remitting MS. It's an implantable neuro-stimulation device that targets the vagus nerve and activates anti-inflammatory and immune-restorative pathways within the central nervous system. It's a pretty novel approach. FDA grants investigational device exemption to vagus nerve stimulation system for MS3. Seeing double is not uncommon when you have MS. In fact, that's what sent me to the doctor when I was diagnosed. I had sixth-nerve palsy and there were two of everything. It was WILD! 🤯 Well - thankfully - researchers have been seeing double - and learning a lot about MS and it's potential causes and risk factors. Twin Study Provides Insights into the Development of MS
Did someone say AMAZON PRIME DAY??? Why yes, yes it is!! Want to see the products I've found helpful for living your best life with MS & get them at a discount?? Check it out right here - right now: FUMS Amazon Shop
4. Do you know how much MS has cost you - in actual $$? Any idea how much it may end up costing?? It's pretty sobering. So sobering, in fact, that I had to pour myself a little sompin sompin when I read it! 🍷 What Does It Cost to Treat Multiple Sclerosis?5. We're familiar with the association of having EBV (Epstein Barr Virus) antibodies and MS. But Rubella? YES - Rubella. You know - the "R" in the MMR vaccine. Yep - there's quite an association there too. And the good news is - a vaccine already exists. "A study out of Sweden shows how the rubella vaccine may end the risk of multiple sclerosis from this virus later on." Does Having Rubella Increase Your Odds of Getting MS?6. Plasma has come a long way since my friends in college sold theirs to buy a stereo. 🙃 Plasma exchange (PLEX) therapy is effective for severe relapses in people with multiple sclerosis (MS) who respond inadequately to standard corticosteroid therapy, according to a new study conducted in Serbia. Better outcomes were seen in younger patients and in those with low disability scores at the time of relapse. Plasma exchange therapy found effective for severe MS relapses
MS Clinical Trials Currently Recruiting 📋
Prevalence and Impact of Obstructive Sleep Apnea in Multiple Sclerosis (SOMNUS) - This study will evaluate the influence of sleep apnea on clinical and radiological features of MS. Sleep apnea is associated with hypoxemia during sleep, which is likely detrimental to MS. Clinical data (MRI, lab results, medical history, labs, and sleep studies) of MS patients will be collected and analyzed. This will be done to study correlations between MRI, clinical data, lab studies and sleep studies. There is specific interest in the type of sleep apnea associated with MS, and whether MRI or clinical metrics of MS severity correlate with presence or absence of sleep apnea.
The purpose of this research is to examine the effects of two different exercise training regimens for managing depression and improving other health indicators among persons with multiple sclerosis (MS). The project will enroll persons with MS and major depressive disorder (MDD) between 18 and 64 years of age. The investigators will enroll a total of 146 participants. This is a Phase-II trial that compares the efficacy of an exercise training program (POWER-MS) compared with a stretching program (FLEX-MS) for immediate and sustained reductions in the severity of depression among persons with MS who have MDD.
That's all folks. Let me know if you have any questions or if I can help you in any way. Otherwise, just keep saying FUMS!! 🧡Cheers -- KathyKathy Reagan YoungFounderFUMSP.S. Be sure to get over the FUMS Amazon Shop TODAY - it's the last day for Prime Day Deals!!
PLEASE share this newsletter 👇🏻
