- The FUMS 6-Pack
- Posts
- [Re-sent] October 10, 2023
[Re-sent] October 10, 2023
The FUMS 6-Pack 🍺🍺🍺🍺🍺🍺

Hello friends --How's things?? I have been busy getting ready to start a new MS drug tomorrow. I'll be hooked up to a Briumvi infusion after first getting a cocktail of steroids and Benadryl. Sounds like a solid nap to me! If any of you have any advice for me - from what to bring with me for a smoother infusion to how to how to stave off possible side effects - I'd sure appreciate you hitting reply to this email and giving me some advice! Ok - shall we see what's lurking in the 6-pack then??1. I read and re-read this subtitle several times, first blaming cog fog then realizing it really IS that confusing: "Results of new study show both greater, less risk for patients" 🤔 The article helped me to understand but sheesh - that one made my head hurt! Switching DMTs in MS found to impact relapse risk in real world2. Whoa. This is not good news: "People with MS who develop progressive multifocal leukoencephalopathy (PML) as a side effect of Tysabri (natalizumab) often see their neurological symptoms worsen severely during the infection and their disability gradually accumulate over time." 😳 PML caused by Tysabri results in lasting neurological symptoms3. In the 5 years prior to your diagnosis, did you experience depression, anxiety and other mental health issues?? Turns out - that's quite common and potentially a marker for MS's prodromal stage. Mental health can trouble MS patients 5 years before diagnosis4. This is just a feel good moment: Rapper Drake saw a sign at a recent concert that said "I just found out I have MS, please make my night." And he did. He promised to pay for her to get "the best help in the world." That's so great. Hey Drake (because he undoubtedly reads the 6 Pack weekly) - thanks for the love and support - and shout out - to our community. #FUMS (feel free to use this hashtag on your socials and on stage 😉) Watch the video here: Drake Offers To Pay Medical Bills For Fan With Multiple Sclerosis Amid His Own Health Issues5. I love it when something we likely already have can be used to help us in some way or another. Google Maps Timeline may help in monitoring walking ability in MS6. Meditation in general - and guided meditation in particular - has helped me sooooo much - mentally, emotionally and thus - physically. I'm working on producing some guided meditations specifically for people with MS - talking to the bastard as we envision erasing the lesions, feeling less fatigue and blowing the pain right out of our limbs!! In the meantime, my friend and fellow MS advocate Megan Evans of The MS Stage recently created an album of guided meditations. Give it a go, right here: The MS Stage Guided Meditation AlbumThat's all folks. I hope you found something interesting and helpful this week. Please do me the great honor of forwarding this to someone you know that could benefit from it. I appreciate your help sharing the good news of FUMS!! Thanks.Cheers -- Kathy#FUMSP.S. I added some new products to the FUMS Shop. Can you say beanies and hot cocoa cups? Just in time for the cooler temps. 🍁 Here's where to go: FUMS ShopP.S.S. Let me know if there are other products you'd like me to put a fat FUMS on and add to the shop and I'll try to make it happen. 😉
Sometimes it helps the stress, just to say "F-U-M-S"