- The FUMS 6-Pack
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- Sept 18, 2020 FN6P
Sept 18, 2020 FN6P
FUMS Friday Night 6-Pack 🍺🍺🍺🍺🍺🍺

Hello friends --I hope this finds you doing well. My flare or pseudo-flare or whatever - continues. UGH. The pain and numbness in the same spot is really hard to explain to people that haven't experienced it! The cog fog, the vision stuff - it's all just so much fun! But - as my mother used to always say - "this too shall pass." I'm counting on it - and saying FUMS every damned day. Ok - let's get on with it, shall we:1. I'm so psyched that Healthline asked me to write an article about my experience of having to leave my job due to MS - and subsequently finding remote work that supports me financially and as a chronic illness patient. I'm starting a community for chronic illness folks to learn to find and create remote work situations called Patients Getting Paid. The article talks all about it: How I Created Flexible, Remote Work While Living With a Chronic Illness2. When you were diagnosed, were you in the early intensive treatment camp or the ramp it up camp??? Here's a study that suggests that Early Intensive DMT Use in RRMS Appears More Effective Than Escalation3. Where are my lady FUMS'ers who've had babies ? Did you feel better during pregnancy? Or - did you have a relapse - or even your first symptoms after pregnancy?? I think you'll find this article interesting: Symptoms of MS ‘Delayed’ by Pregnancy4. Hey - you Rituximab users: good news! Lower dosages have been found to be safer and as effective as higher doses. YAY!! Low Rituximab Doses Are Safer, as Effective as Higher Ones5. How about a love story with an MS twist?? My friends Dan & Jennifer Digmann of A Couple Takes on MS wrote the book on the intersection of love and MS. They both have it - met after each was diagnosed. I adore them. They were my very first FUMS Podcast Show interview!! Here's a link to listen: Dan & Jennifer Digmann I'm scared to listen. It was, after all, my very first interview. UGH. Let me know what you think. Oh - and here is an article that People Magazine did on them last year: MS Brought This Couple Together6. This headline REALLY caught my attention: No Evidence of Disease Activity Seen in Most RRMS Patients After Switching to Ocrevus. I need to talk with my neuro about this!! That's all folks. Hope you found some interesting tidbits in this newsletter o'mine. HUGE shout out to my Patrons who help keep this newsletter, the podcast, the website, and the social media (so basically ME!) going with their monthly contributions. Want to join them and lend your support for my efforts? I'd be so grateful. Here's where to go: Support FUMSWarmly -- Kathy#FUMS
Sometimes it helps the stress, just to say "F-U-M-S"