September 4, 2020 FN6P

FUMS Friday Night 6-Pack 🍺🍺🍺🍺🍺🍺

 

Hello friends --UGH. That's how I'll start this email. UGH. I have been working SOOOO hard on the Patients Getting Paid membership site, planning, writing, developing, recording, etc. I'm so excited about helping people with chronic illness find and create job situations that accommodate their health - like I've been able to do. But this last week - MS (the jealous bastard) decided I hadn't been paying enough attention to it so - it GOT MY ATTENTION!!  I'm struggling. Cog Fog, pain, numbness, Cog Fog! The forced supine positioning gave me time to think. The reality of MS is it is really unpredictable (hello choir, sorry about preaching to you). And a full-on membership would require a lot of ongoing work and involvement, with dates and deadlines and everything that is stress inducing. I think that is going to be untenable for me - thanks to MS. I need to figure out how to deliver my help, my experience, my knowledge and my resources in a way that isn't so hands-on.  Perhaps courses.  Perhaps live trainings. Perhaps ebooks. I'm not sure just yet. Because cog fog. But I wanted to tell you all what I'm going through and what I'm thinking - since you were the first people I told about PGP.  I'll keep you updated. I hope to feel better soon - and be able to think again - and make some decisions.  UGH.Ok - let's get to why you're here: 1.  I'm starting with a recommendation. For a cooling vest. Of which there are many. But this one is different.  It's ThermApparel's UnderCool cooling vest. It fits close to my body so I don't look like I'm smuggling things under my clothes (talking to you big, bulky cooling vests) - and it keeps me cool to my core for hours. I can enjoy being outside again. What a gift. Get yours here: UnderCool Cooling Vest. Use the code FUMS and get 10% off through tomorrow (9/5/2020)2.  THIS ONE SCARES ME. I have a zero co-pay patient assistance plan for my DMT. How about YOU??  Could a Justice Department Lawsuit Threaten Copay Assistance Programs?3.  GREAT questions posed by MS Advocate and gifted writer Trevis Gleason:  What’s the Plan for People With MS, Post-COVID-19 Pandemic?4.  I'm hearing from more and more people that their employers are calling them back into the office and either they or their doctors aren't comfortable with that idea. So - how do you handle that???? Read about it here:  My Doctor Says I Should Work from Home. Can My Boss Say No?5.  Here is a gig opportunity ala Patients Getting Paid: Looking for patients with multiple sclerosis, from an underserved or minority community, to review patient-reported outcome measures. This gig pays $150. **Please share. They needs LOTS of people.  MS Gig6.  A comparison of immune cells isolated from identical twins — in which only one of each pair was diagnosed with MS — identified a population of immune-regulating T-cells present in those with asymptomatic brain inflammation. Read all about this interesting study right here: Immune T-cells Trigger Early MS Inflammation, Twin Study Reveals Well - that's all folks. Please forgive any misspellings, grammatical faux pas, etc. It was a struggle putting the 6-Pack together today. Hope you're doing well. And I hope I'm doing well soon!!Warmly -- Kathy#FUMS

Sometimes it helps the stress, just to say "F-U-M-S"