September 6 FUMS Friday Night 6-Pack

FUMS Friday Night 6-Pack šŸŗ

 

Hello friends --WOW! I didn't think I'd be able to get this Friday Night 6-Pack out today. We've been dealing with Hurrican Dorian all day. Things are looking up. The sky has brightened a bit, the wind has calmed and the electricity is on!! YIPPEE. So now - let's get to the good stuff - quick - before the electricity blinks off again:1.  The latest FUMS Podcast episode published this morning (another miracle). This one is quite short (just 15 minutes) but it gets the point across. My guest, Jessica Donaldson, has Lyme Disease and she had to find work that would accommodate her chronic illness. And so she did - and she is sharing just how she did it. Listen in here (but be sure to subscribe wherever you get your podcasts): Got Lyme, Needed More Time2.  Do yourself a favor - read this incredibly witty, insightful, actionable article on Sex with MS by the amazing Tripping on Airā€™s Ardra Shepherd. As a writer - Iā€™m humbled. As an MSā€™er, Iā€™m educated. Enjoy!!  How to Hack Your Sex Life When MS Messes With Your Mojo3.  This really pisses me off. šŸ¤¬  Multiple Sclerosis Drug Costs Skyrocketed4.  This is consistently controversial in the MS world - the question of vaccines - especially the flu shot. Every year I have to go in and referee arguments on the topic. Here are some definitive guidelines set out by the American Academy of Neurology - and the answer is - YES - to vaccines - INCLUDING THE FLU SHOT!! What say YOU? Will you get it this year??  Vaccines for MS?? YES5.  This article by my friend Cathy Chester - An Empowered Spirit is spot on - and this whole ageism shit pisses me off. Iā€™m not ready to be shelved. I have a lot more to do and I need the medical community to support me and my health - not give up on me.  Ageism in Clinical Trials and Healthcare6.   I have a BIG FAVOR to ask of you. I'm working on the 50th episode of the FUMS Podcast Show!! I want to make it something special so I thought I'd add YOUR voice to it! PLEASE record a message (via voice memo on your phone) talking about anything FUMS - your favorite pod episode, favorite blog post, how you've been helped by FUMS, your wishes for FUMS's future - whatever. I want this to be a celebration of where we've come from - and where we're going. Please keep your messages short (30 seconds or so), include your name and where you live, and send them to me via email at [email protected]. Thank you so much in advance. This is going to be GREAT!!ALSO - I want to feature "Mug Shots" of our community. Please order your FUMS (coffee, tea or whatever) mug, take a picture of you holding it and post it on the FUMS Facebook page! Let's see who has the Best mug shot!! Order yours right here: FUMS Merchandise ShopIs there anything I can do to help YOU?? Drop me an email and let me know at [email protected] or meet me over in the FUMS Facebook community and let's chat!  Thanks.Warmly -- Kathy#FUMS

Sometimes it helps the stress, just to say "F-U-M-S"