The FUMS 6-Pack | 4/12/25

The top 6 topics in MS this week

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Kathy Reagan Young & Ibrahim Adam Said
March 12, 2025

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Check out last week’s poll results at the bottom of the 6-Pack ⤵️

Hey there,

As I’m writing this, I’m looking out the window at a bright, sunshiny day 🌞 (click the link for a little treat). I see freshly popped Daffodils, and buds on the trees. And I’m L🧡VING the later sunsets. Spring feels like it has sprung in Virginia Beach!🌷🐣 I feel “lighter” and “uplifted” at this time of year. Do you? I hope so - and I hope you’re enjoying some lovely spring weather as well. A bit early for some of you I know (shout out to my Minnesota family reading this right now 🥶) but hang in there - it’s coming your way soon too! 🥰


Let's see what's up in the world of MS, shall we??

  1. I had just talked with my neurologist about potentially stopping my MS meds.

    My MS had been stable for a couple of years and I was getting um, ahem, older. And then BAM!! 🧨 My annual MRI showed a new lesion and 2 of my old friends that were growing. WHAT!?!?! 😳 😡 🤬 “In people with MS, lesions that get slowly bigger over time, potentially due to chronic inflammation, are associated with more myelin loss throughout the brain, a study found.” Damn it. It does explain a few things though! 🙃 Slowly expanding MS lesions linked to myelin damage in brain

  2. What comes to mind when I say “personalized medicine”? I think of my care partners really hearing and seeing ME and prescribing medications and therapies based on that. Sounds good, right?? We’re getting there. Here’s a quick, 5-minute video talking about the evolving landscape of MS treatment: Personalized Medicine and Biomarker Innovations in Multiple Sclerosis Treatment: Enrique Alvarez, MD, PhD

  3. “Progression independent of relapse activity, or PIRA, in the earliest stages of RRMS is associated with worsening quality of life, a study in Sweden shows.” I just re-read that sentence. Um - yeah! 🙃 PIRA linked to worse quality of life in early RRMS patients

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  1. Cristin Welle, professor of neurosurgery and physiology at University of Colorado School of Medicine, talked about how vagus nerve stimulation may promote remyelination and functional recovery in multiple sclerosis. [WATCH TIME: 4 minutes]. Exploring Remyelination and Functional Recovery With Vagus Nerve Stimulation in MS

  2. Fatty fish have previously been linked with lower levels of MS disability, and a recent study adds further support to the benefits of fish consumption when it comes to living with MS, a disease that attacks the central nervous system. *If less MS is your wish - cast a line 🎣 and eat some fish!! 🧡 Eating More Fish May Slow MS Disability Progression

  3. More word fishing. New aches and pains. What’s the result of the normal aging process, and what’s due to your MS? Here’s how to navigate some of the unique challenges that come with growing older and having MS.Is It MS or My Age? 10 Tips for Aging With Multiple Sclerosis

Fun Finds & Recommendations Disclosure: This post may contain affiliate links, meaning I get a commission if you decide to purchase through my links, AT NO ADDITIONAL COST TO YOU

As we get further into the Spring season - there is more need for a lightweight, throw on jacket like this one from Champion. Great quality. Multiple pockets and a drawstring hood. Oh - and l👀kie there - our fighting mantra right there on the front: FUMS 🧡. Here’s where to get yours: FUMS Embroidered Spring Wind Breaker (available in black or graphite)

Last week’s poll results:

That's all folks. Let me know if you have any questions or if I can help you in any way. Otherwise, just keep saying FUMS!! 🧡

Cheers -- 

Kathy

Kathy Reagan Young
Founder
FUMS


 

Sometimes it helps the stress, just to say F-U-M-S

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