The FUMS 6-Pack | January 8, 2024

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Today's presenting sponsor is Better Sleep

Hey there,

WHEW! The whirlwind of the holidays is behind us. How did you do?? I had a fantastic holiday season. My family and I FINALLY went to NYC to see the lights and decorations 🎄(this has been on my bucket list for YEARS), we spent a lot of time together here in Virginia Beach looking at the lights here, walking the beach,🌊 decorating the cottage, cooking/baking, coloring, reading, watching movies, wrapping and unwrapping gifts, sleeping, talking, drinking 🥴, going to live music 🎶 shows, sitting around firepits🔥 chatting with friends, etc. The thing that ties all of these “activities” together - and what is so soul-filling for me - is spending time with people I love - and who love me. Community. It’s so damned important. Studies show that social interaction - community - benefits both mental and physical health. I’m glad you’re a part of my community - of our community - of the FUMS community. We’re better - together. 😉

So - let’s get back to business. Let's see what's up in the world of MS, shall we??

1. I’m super excited about a LIVE video presentation I’m doing today (January 8th) at 2:15 pm EST on the MS Workouts platform. It’s all about how UVB phototherapy can help decrease systemic inflammation and reduce fatigue.

   

   It worked for me! Come and hear about the science behind it and my experience with it! Please join me - here’s where to go: UVB Phototherapy for MS Fatigue

2. Where are my Tecfidera users?? This one’s for you (btw, I was a Tec user - until my insurance company removed it from their formulary - because - you know - the insurance company knows better than my MS neuro what therapy I should be on . . .) Treatment with Tecfidera (dimethyl fumarate) significantly reduces relapse rates for people with MS, and most MS patients on the approved therapy remain free from disability progression for several years. Long-term Tecfidera slows MS disability progression in large trial

3. Have you ever had a doctor tell you that there is no pain with MS?? Yeah - me too. 😤 😡 🤬 I’ll be printing this next study out to have on hand in case someone tries to pedal that BS again: Pain May Be Indicator of MS Prior to Disease Onset: Study

The Sleep App That Forbes Rated 5 Stars 😱

The app Forbes said helps "users achieve high-quality sleep by creating and maintaining effective sleep routines” is back with new sounds and features!

Now featuring over 300 unique sounds to fall asleep to, a personalized sleep tracker and more. It’s no wonder over 65 million people have downloaded this app for better sleep.

Try it tonight 👇

Get BetterSleep!

4. We've lost another of our brethren in MS: Richard Cohen - journalist, author, MS warrior. He was a great example of the FUMS attitude. He was married to journalist and TV host Meredith Vieira and was diagnosed with MS 50 years ago! He wrote some fantastic books about MS. In particular - this one about his experience with stem cell therapy:

5. Age is a modifier with great potential impacts - and should be taken into consideration for things like clinical studies, therapies - and start time of concerts (could we just agree to have a matinee for all live music concerts? I’d really appreciate it. I digress.) It always sort of tickles me that there are ongoing studies that show things of such common sense (like that age makes a difference 🙃) Age Is a Major Modifier of Inflammatory CSF Signatures in MS

6. I saved what I assume will be the most exciting story for last: An investigational drug for multiple sclerosis from Io Therapeutics has restored leg mobility and myelin nerve coatings in mice. 😳. Reparative treatment? Can I get an amen? Drug candidate restores myelin and leg mobility in multiple sclerosis mouse model

Kathy's Fun Finds & Recommendations

Have you heard of Amazon Pharmacy?? Yep - a pharmacy through Amazon. They accept most health insurance! You can sign up and order online and have your scripts delivered to your door! They say they can save you money too. 🤷🏼‍♀️ I haven’t tried them - YET. I’m anxious to though. When I do - I’ll let you know. And if YOU do - let ME know! 😉. Here’s where to check it out: Amazon Pharmacy

That's all folks. Let me know if you have any questions or if I can help you in any way. Otherwise, just keep saying FUMS!! 🧡

Cheers -- 

Kathy

Kathy Reagan Young
Founder
FUMS



 

Sometimes it helps the stress, just to say F-U-M-S

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